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Our work Lived experience research

Barriers to employment for people with complex mental health needs

The participants in this study wanted to work. The barriers weren't about motivation - they were about systems that repeatedly underestimated people and environments that weren't designed for them.

Sector
Third sector
Method
Workshops, journey mapping
Setting
In-person, community
Focus
Inclusive employment
The challenge

Job readiness programmes that miss the real obstacles

Employment plays a critical role in wellbeing, independence, and social inclusion. The evidence is well-established. Yet many adults with complex mental health needs encounter persistent barriers when trying to access meaningful work - and those barriers are rarely what employment support programmes are designed to address.

Traditional employment programmes focus on job readiness: CV writing, interview skills, confidence-building. These are useful. But they tend to frame the challenge as an individual capability gap - something the person needs to fix about themselves. This research started from a different premise: that the systems and environments people navigate might be doing more to prevent employment than any individual skill deficit.

The work was delivered in partnership with a third sector organisation supporting individuals with learning disabilities and complex mental health conditions - an organisation with direct relationships with the people whose experiences mattered most to understand.

Our approach

Listening to the journey, not just the outcome

Participation Studio recruited participants through community networks - people with lived experience of complex mental health needs who had attempted to access employment, whether successfully or not. Recruitment through community channels rather than clinical referral pathways was deliberate: it reached people who weren't currently engaged with services, as well as those who were.

In-person workshops explored the journey into work across its full span - from early aspirations and the experience of job searching, through interactions with employers and the realities of sustaining employment once secured. Journey mapping was used to externalise and examine these experiences, making visible the points where systems created obstacles and where individual resilience was repeatedly asked to compensate for structural gaps.

The qualitative narrative approach allowed participants to tell their stories in their own terms - surfacing the specific moments, interactions, and dynamics that shaped their experience in ways that survey instruments simply couldn't capture.

Methods

What the research involved

Participant recruitment through community networks and third sector partners
In-person facilitated workshops exploring the employment journey
Experience journey mapping across search, application, and retention
Qualitative narrative analysis
Insight synthesis and reporting
Outcomes

What emerged from the research

Key finding

Participants consistently expressed strong motivation to work - but described navigating systems that were difficult to read, employers who routinely underestimated what they were capable of, and workplace environments that assumed a level of neurotypical functioning that didn't reflect their reality.

Stigma was a recurring theme - not just overt discrimination, but the subtler dynamics of disclosure decisions, the fear of being perceived as unreliable before having the chance to demonstrate otherwise, and the cumulative exhaustion of managing how others perceive your condition alongside actually doing a job.

Inflexible working environments emerged as a significant structural barrier. Many participants described roles where the terms of employment - fixed hours, specific locations, particular social dynamics - were simply incompatible with how they managed their conditions. Small accommodations that would have made employment sustainable were rarely offered or even explored.

The gaps in employer understanding were specific and important. Employers often had general awareness of mental health as a concept but lacked understanding of what complex mental health needs actually meant day to day - leading to responses that were well-intentioned but unhelpful, or to situations that escalated unnecessarily because the warning signs weren't recognised.

Impact

Where the insight is going

Research impact

Insights from the research are informing discussions around inclusive employment models and accessible workplace pathways - shifting the frame from individual job readiness to the systemic and environmental design of employment itself.

The work contributes to a growing body of evidence that sustainable employment for people with complex mental health needs requires changes to how workplaces are structured, how employers are supported to understand and respond to difference, and how employment programmes are designed - not just changes to the individuals seeking work.

We fully recognise the effort your team invested in recruitment, moderation, and analysis, and we genuinely appreciate the quality of the discussions and reporting.

UK Operations Manager Medicsen

Trusted PPI and PPIE delivery partner to the NIHR HealthTech Research Centre in Accelerated Surgical Care.

Reviewing findings on a phone alongside printed research materials

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