NIHR
National Institute for Health and Care Research
NIHR expects meaningful PPI that begins before the application is finalised, not planned for the future study alone. Applications must describe who was involved in developing the application itself, what they contributed, and what changed as a result.
Reviewers score PPI quality as part of funding decisions, and applications that offer token or retrofitted involvement are routinely penalised. Lay contributors should be characterised by experience and recruitment route, payment should be at NIHR recommended rates, and the impact of involvement should be specific and evidenced.